Showing posts with label chemotherapy. Show all posts
Showing posts with label chemotherapy. Show all posts

Friday, March 27, 2009

March 26, 2009

Yesterday, I was afraid of Art.

He had a PetScan.

We arrive

and wait

for wheel chair transport, compliments of the Cancer Center, to take us to the imaging Mark Taper Imaging Center.

At Taper Imaging,

we wait…

and fill in paperwork.

We move to the you-are-responsible-to-pay-for-uncovered-costs-associated-with-this-procedure-sign-here window.

We move to the waiting room with the TV that no one is watching

And wait.

We are led to a small, muted yellow toned room where they remove, from a lead lined cylinder, radioactive material. The nurse injects it into his just-put-in-for this-procedure IV line.

We are led to a purple waiting room with semi-comfortable chairs where…

he moves from the wheel chair to the semi comfortable chair.

I wait for him and

we wait

for an hour.

They come for him.

The nurse we know. She is sad to see him again, looking unhealthy.

We wait

for Art to get back into the wheel chair. He and the nurse leave.

Art waits in a tube that takes pictures of him, six inches at a time.

I wait in the purple room.

He and the nurse return.

Three hours have passed since we have arrived.

We wait for the elevator to go to the cafeteria.

He waits…

at a table while I get lunch.

We go to the cancer center to have his picc line cleaned.

He waits.

I wait

and worry. He is looking uncomfortable and is telling me he doesn’t want to wait anymore.

I insist we wait.

He insists we go home.

I debate. Infected Picc line? Clogged Picc line means new picc line on Tuesday or worse another hospital stay.

He starts to get mad.

I hold my ground.

I offer my lap, where he can lay his head and sleep.

He sleeps.

I wait.

Nurse comes.

She waits while I rouse him.

He sits up, he gets his bearings

The nurse leaves. I wait 20 minutes before he can move to the wheelchair.


I wheel him into the Picc line cleaning room.

We wait for the nurse.

He gets weighed. 160lbs!!!!!

We wait for the nurse.

He gets mad.

“I’m not waiting.” he says.

“We need to leave!” he says.

I ignore him.


I try to find the nurse.

“We need to do labs on him.” She says.

“I am waiting for doctor’s orders.” She says

He raises his voice to me.

“I’m not staying. We need to leave…now.”

I think “Who the hell do you think you are?”

He raises his voice to the nurse, “I am not waiting for labs.” He blusters.

I leave the room.

And I see that I am afraid.

Afraid of his anger, afraid of what it says about me. I take on its message, believing that it speaks the truth.

"Unworthy."

it says.

"Not good enough!"

it screams.

Later,

I am either brave enough to look at it

Or too exhausted to care.

Either way, I know, the anger was lying.

I am good enough.

I am worthy too.

The cancer has made that clear.

And so has he.

Thursday, March 05, 2009

March 4, 2009



Art is back in the hospital.

I knew it would happen, its just well....the 1:00 am phone call to 911 was not part of the plan. The call to a dear friend to come stay with the kids was not part of the plan. The passing out. Been there, done that. Was so not part of the plan!

Poor guy.

Massive indigestion for an hour.

Followed by vomiting.

Followed by fainting and waking up to the confusion of me, saying "Honey? Honey?"
There was no panic. I knew what needed to happen.

I was the premidonna on the phone.

"Um, is there any way they take him to Cedar Sinai?"

"Oh and please, no sirens. My children are asleep and I'd like to keep it that way."

"Thanks so much for coming! Um, could you turn your radio down, please."

And I wanted to say "Can you walk on your tip toes? My kids will surely notice the clunking of your heavy boots." And "Fellows, please. Let's keep it at a whisper." (Ever notice, men don't whisper!)
They couldn't take us to Cedars, however, after they checked him out, they did offer to put him in the car for me.

The 10 (major freeway route in LA) is delightful at 2 am.

The ER room was even delightful. No gun shot wounds, heart aches or fall out from bar fights.

At 4 am the tested him.

Lying down. Blood pressure 98/60
Sitting up Blood pressure 90/60
Standing Blood pressure never gotten cuase he started to pass out again.

Congratulations honey! You get to to stay!

And for a parting gift, you Kim Hamer get this lovely bag with "Patient Belongings" written on it. Your absolute favorite!

What it should say is:

Caution:
Person carrying this bag is not stable.
Their loved one has just been admitted to the hospital.
To add to their anguish, we have inserted this little string, masquarading as a handle,
that will dig into their hand when they pick up the bag. Giving them phsyical discomfort to go along with their emotional comfort.

Please stand back at least 20 feet.

Another day in our lives. This one with humor, a touch of saddness and whole lot of resignation. This is our life but it is a life. I am grateful.

Monday, March 02, 2009

March 2, 2009

“Where should I go?” Art asks.

He’s standing in the living room, on his crutches. Chemo fog having lifted a bit this morning.

I look at him and start to cry. This morning, I can’t figure that out for myself and now I need to do it for you?

I slam my office door.

I slam my head against the wall.

Great….I just hurt a sick man. Wow….now I feel f-a-n-t-a-s-t-i-c!

The guilt rises and as I open the door and see his face, the anger takes over.

I have to choose between his needs and mine.

Feels like I’ve been doing that for a really long time. His needs always come first. The duty-fucking-ful wife.

And now, when I’d like to be able to choose, with love, to care for him, I find myself resentful and full of anger...again!

I reach in, groping for the peace, the calm, the will to get through one more day. To get through this moment.

And all I feel is dry, grainy sand. My well is empty.

“You can’t give from the well if the well is empty.” I made up that saying to help new mothers. Damn, now I have to pay attention.

My well is empty, bone dry. Been living on sludge and grim, scraping the residue from the walls, fooling myself into believing that it will be enough and I’ll find the water source tomorrow. Scarlet O’Hara and I. Tomorrow.

Now, I have no idea on how to get the waters to flow again. I don’t have the energy to figure it out. No idea what I need. No idea what will help. No idea. And I’m drowning

But this time I know I won’t drown. My ancestors, chained to the innards of a boat, lying in their own filth, not enough slack or room to sit up, only to come to a place that was more harsh. They survived. They watched their spouses come near to death too. Others turned to them and said “Where should I go?”

The answer that echoes inside of me? The answer I imagine some of them had the courage to give?

“I don’t know. Just hold my hand. We'll find a place.”
After I write this, I go to him, and extend my hand. Thankfully, he takes it and together we end up in a place.
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I could use some comments tonight (0r tomorrow). Fill my well.