Art has lost 16 pounds since August 28.
Words today, lots and lots of words. "Did your HMO do....?" Usually followed by a "No." Nuprigen, CHOP, Retuxan, life threateniong, CHOP 14, Epigen, Adriamysn, ANC #, life threatening, intrathecal, decodron, antiamedics, chemo starts Sept. 25, life threatening, no travel at Christmas, life threatening, stem cell transplantation, bacteria, germs, protein, shakes, doses 3x week, transfusion, newlasta, radiation, life threatening, shaking, not above 100.5, day 6.
I wanted him to stop saying life threatening. Every time he said it, it took 30 minutes of sleep away from me. Couldn't he have used "really bad" or "not so well?" How about "life threatening" only once? It feels like every tiny little germ is out to get Art and my big clumsy hands are ill equipped to protect him. By the time I left, I was vowing to stay awake to make sure Art kept breathing!
On another note....chemo dates have been set. September 25, five days on. One week off, then five days on. They will do intrathecal as well as regular chemo -- meaning they will inject chemo into his spine to make sure that any wily cancer guys are not in the spine waiting to emerge later after chemo is done. Last round will be week of Dec. 4th. I typed that date earlier tonight in a different email and started to cry. December 4th -- it's so far away. How on earth are we going to get there from here?